Sometimes I wonder what it would be like do go threw a day without any pain. And I don’t mean getting rid of pain by drowning it or masking it with drugs I mean if it just wasn’t there to begin with.
With my disease pain has always been a major part of my life. In fact I can’t recall a day when I wasn’t in pain whether moderate or severe. I’ve learned to function threw the pain, and for the most part I can get threw the average day without anyone knowing anything is bothering me.
On days like this particular day when every move feels like my bones are being crushed, I fantasize about what I would do if the pain didn’t exist. Sometimes I think I would feel weird, kind of like what I would imagine an outer body experience would feel like. After so many years of functioning with the pain I think I would feel like my body wasn’t mine anymore. Other times I think of how much I would love it and all the things I could do without getting the aftershock of pain that always follows.
In the end it always comes back to the same thing…pain is part of life. Some people have emotional pain and others have physical pain. It’s how we deal with the pain in our lives that define our character. Too many people mask their pain and try to bury it but that only ends up adding to the pain. It’s only by confronting our pain and dealing with it can we move past it.
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Hi Melissa! Thank you for the sweet comments and for checking out our blog! Sonya is such a determined girl! She is type 3 and quite the little OI dare devil! It definitely scares me to death having her up and taking shaky steps with her walker, but I just let her find her own way through life. She makes all the decisions on what she wants to do physically. I don't push for her to do something nor do I keep her down, I simply provide the instruments to help her. It's always one step forward, two steps back in our house though. You should see her in action! She climbs the stairs, butt scooting all about and gets into plenty of sticky situations! Sonya has been working on pulling up to stand since May I think... but she has had many leg fractures! I think the best thing for her is Pamidronate! Ever since she started it (July I think) she has been much happier! I think she is feeling much relief from the pain while she is on it. I can definitely tell when she is due for more, mobility decreases and she cries so much from the immense pain. It breaks my heart! We are working on getting her wheelchair right now.. although she is making strides towards walking, her endurance is very low. Wheels will give her so much more independence! I can not wait! I love the last paragraph of this post. "Pain is a part of life..... It's only by confronting our pain and dealing with it can we move past it." So true! Well said!
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